The J's at Home - A special kind of care PDF Print E-mail
Written by The J's   
Wednesday, 23 December 2015 09:00

At 18 years old, patients with life limiting and life threatening conditions leave children’s services and this can be a worrying time for families. Due to improved medicine and science, patients are living longer than expected. The J’s Hospice provides a dedicated, specialist service for these young adults to empower them to make choices about their care and treatment, as well as encouraging them to be who they want to be.

We aim to provide: 

Specialist advice and support - each care package is unique, drawn up by J’s Specialist Nurses with the young adult’s involvement. Our nurses provide ongoing advice, support and advocacy to patients and carers.

Expert advice in transition from children’s to adult services - helping young adults and their families find their way through the complicated pathways to get the support they need. The J’s holds a weekly group called ‘Thank J’s it’s Monday’ (TJI Monday) which offers patients living in the North East area of the county the opportunity to socialise with others and take part in confidence boosting activities whilst being supported with life choices.

Practical nursing care – symptom control, pain relief, monitoring medication and providing hands on nursing care to meet each person’s needs.

Respite care in the home – short breaks provided in the home by highly skilled healthcare assistants.

Counselling – an opportunity to share thoughts and explore feelings with a qualified professional.

Chaplaincy – provides spiritual support to everyone regardless of their religion or beliefs.

Music therapy – uses music to support communication and encourage self expression.

Complementary therapies – including massage and reflexology to ease anxiety, aid symptom control and encourage relaxation and comfort.

Volunteer drivers – use of The J’s Hospice mobility vehicle to enable patients to attend hospital appointments or The J’s Young Adult Groups.

Family support– someone to provide emotional and practical support both to a young adult and their family in their own home.

‘Inspire!’ patient social groups – These days allow young adults some time away from carers to socialise with people their own age, whilst enabling their parents to have some quality time together.

‘J’s Days’ – Offering patients the opportunity to experience days out at requested locations with peers whilst facilitated by The J’s Hospice.

End of life care – recognising when a young adult is near end of life and helping prepare them and their family, and providing practical and emotional support.

Bereavement support – Continuing to be available after the loss of a loved one and offering support on a 1:1 or group basis.

 

“It is evident that The J's is providing care for young people who may otherwise have fallen through the gap or been admitted to hospital” – Essex Cancer Trust

Last Updated on Saturday, 16 April 2016 00:51